On Friday when we arrived at the hospital all eager and excited to take our daughter home we were sadly told that she would not be going home that day. We were understandably disappointed and a bit discouraged. Honestly, it wasn't that she wasn't coming home that day, it was the reason she wasn't coming home that we were so sad.
The results from her bladder test (I can't remember the official name) came back and unfortunately the results were not as positive as we were hoping for. They determined that Annabelle is not fully emptying her bladder. Although she is urinating, it appears that she leaves some left in her bladder. The problem with this is that it makes her more susceptible to getting urinary tract infections as well as possibly putting undue pressure on her kidneys. They did what they referred to as an "in and out" catheter to see how much was left. This was very difficult to watch, however, she really didn't seem bothered by it at all. There were 7cc that drained out (which isn't very much) but it was enough for her neonatologist (the Dr. who takes care of her in the NICU) to contact the urologist. He will be coming to see Annabelle on Monday morning.
They were also concerned about her shunt incision. Her morning nurse indicated that she felt some wetness on the outside of her head incision. This was really bad news and caused a lot of concern. Her neurosurgon (who we love) was called and came to to look at her immediately. He did not see anything but wanted it closely monitored and he was to be paged if there was any more wetness or redness detected. He also ordered an antibiotic cream to be applied to her back twice a day.
The two Dr.'s talked and decided that it was best that Annabelle stay a few more day's to ensure that her incisions were healing without infection and that she could meet with the urologist on Monday to be evaluated.
Later that day we met with the Pediatric Physical Therapist who taught us some Range of Motion exercises that we need to do twice a day with Annabelle's legs, thighs, knees, ankles and feet. Of course Annabelle slept right through it when the PT was demonstrating how to do it but decided to wake up an fuss when it was my turn. She's already starting to act like her brothers!