Well, I have to be honest I don't really feel much like putting this post together, but I also don't feel up to calling anyone with the latest news :-( What to do? We are truly blessed to have so many people that love us and our beautiful baby on the way and I know that they want to hear the results of yesterday's ultrasound. So here it is in a nutshell:
She was very cooperative this time and we got some adorable pictures of her. The 3D and 4D ultrasound images are just amazing. The boys knew right away that it was a picture of their sister I brought home. She's measuring the right size, but has very little "meat" on her bones. It's crazy that the only time I have trouble gaining weight is when I'm pregnant - go figure?
They were able to see the hole (birth defect) in her spine this time. It appears to be located at L5 to S1. This is the last lumbar and the first Sacrum.
Lumbar – The lower part of the spine between the thoracic region and the sacrum. The lumbar spine consists of five vertebrae.
Sacrum – A part of the spine that is also part of the pelvis. It articulates with the ilia at the sacroiliac joints and articulates with the lumbar spine at the lumbosacral joint. The sacrum consists of five fused vertebrae that have no intervertebral discs.
Ideally if you are going to have an opening in your spine this is one of the best places to have it. The Dr.'s and everything I have read have said "the lower, the better".
They did unfortunately detect the beginning stages of Hydrocephalus (water on the brain). This was very disappointing to us. Although, we were fully aware that 75% of children with Spina Bifida develop Hydrocephalus we were really hoping our baby wouldn't. We really don't know exactly what else this means for her except she will most likely have another surgery to insert a shunt into her head to drain the fluid.
I'm not sure if there was much else notable from the visit. It was a pretty overwhelming morning for us. I am SO thankful that Branden's job understands and allows him to come to work late so we can be together. That has been unbelievably helpful.
We did meet our new doctor. Her name is Dr. McNaulty and we really liked her. We had heard that she was wonderful and our first interaction and impression of her was very positive. She is very optimistic and although was honest about what she saw on the baby's spine and brain she was quite encouraged by the look of the baby's other organs. She was quick to correct me when I referred to the baby as being "sick". She said "your baby is NOT sick, she has a birth defect and we will be correcting it once she is born". She reminded me that as of today all of her other major organs are functioning very normally. We pretty much ended on that note and felt comfortable that she will be the one that will be seeing us through this pregnancy. She also gave us the "go ahead" to go on our family vacation to Yosemite. We are very excited! Looking forward to sharing stories and photo's about the trip when we return. My next Dr.'s appointment will be on May 8th.
As always, thank you for caring and for your continued love and support.
Nicole & Branden